All You Need to Know About Special Needs Estate Planning

Brad Smith • Mar 04, 2020
Life is full of ups and downs. There can be times when you will feel as if you were taken away by a big, wild wave while a moment ago you were enjoying a stroll at the beach. One never knows what destiny holds for him ahead. Therefore, we all should be prepared.
Disabilities are one such steep mountain to climb in the path of life. Families with disabled children strive a lot to cope up with the fast-paced life today. During their lives, parents fight tooth and nail to provide maximum to their children but the question, "What will happen to our kids when we will pass away?" disturbs many, especially if their child is disabled. Hence, SNTs came into existence.

A Special Needs Trust (SNT) involves a donor, trustee, and beneficiary. A trustee's job is to hold and allocate the donor’s funds, according to his wishes, to the beneficiary. To work out the best possible plan for individuals with special needs, there also exists a special needs planning attorney who ensures all the related issues are taken into account. However, there are a few important things that must be acknowledged by a donor.

No Disinheritance

If you ever think of disinheriting your beneficiary with special needs because of numerous reasons, the most common of them being the government benefits they receive, then don't. There is a midway too where your beneficiary can benefit from your financial assets and also avail the facilities that the government provides for him. And SNT's provide that midway. However, there are still some estate planners who advise disinheriting but it is no more encouraged and such planners are now being held liable for it.
Special Needs Benefits

The Difference Between the Types of Government Benefits

In the matter of allocating assets for your beneficiary with special needs, you need to be familiar with means-tested benefits and those that are based on employee work history. If a benefit is means-tested, it will be eligible to the beneficiary if his income and resources ( means ) are below a certain level, for example, Medicaid and Supplemental Security Income. The other employee-based benefits are majorly insurances and are dependent on employment history. Medicare and Social Security Disability Insurance are few of them. An SNT should not only maintain the beneficiary's mean tested benefits but also look out for employment-based benefits, if eligible. Now there can be cases where a disabled person might not need insurance of some type, for example, Medicaid but there can be other programs that would require Medicaid eligibility. Those programs might be important for the disabled person. Therefore, it is smart to keep all the doors open.

The Types of SNT's

One should know the difference between three main types of SNT's: the first-party trust, the third-party trust, and the pooled trust. The assets possessed by the beneficiary with special needs such as those received by inheritance or accident settlement are held by the first-party trust. The third-party trust is usually used by parents or other family members who want to allocate their assets to someone with special needs and hence holds funds belonging to them. Whereas, a pooled trust holds funds from many different disabled beneficiaries. To best protect the beneficiary's government benefits, the decision of choosing which type of SNT must be made wisely.

Choosing a Trustee

As discussed earlier, a trustee is someone who holds and administers the financial assets according to the owner's will. This is a very integral job and the donor must be very sure about the person they will be assigning as the trustee. It is often suggested to choose a professional trustee, who can either serve alone or be a co-trustee with a relative or a family member.
https://www.specialneedsalliance.org/special-needs-101/free-trustee-handbook/

The Division of Assets

The dispute that arises during the distribution of assets is very common. This can be a very strenuous moment for parents who want to content every child of theirs but are tangled by the complexities of the issue, especially when one of the beneficiaries is disabled. According to many, the child with special needs must be allocated a greater proportion of assets as he needs more but it is easier said than done. Therefore, proper planning should be made so that creative resolutions can be opted, ensuring justice to all.

Beneficiary Designations

There are some assets that are governed by separate beneficiary designations e.g. life insurance, IRAs and other retirement plans. It is crucial to keep them into account as well while administering and allocating donor's assets.

The Distant Family Members Wishing to Become Donors

In the case of distant family members who wish to allocate some of their assets to the disabled person, it is wiser to coordinate with them using a third party SNT instead of everyone creating their own trusts. In this way, the beneficiary's benefits provided by the government won't be compromised as well.

Assistance From a Team of Allied-Professionals

Besides an estate planning attorney, one can also go for allied professionals like a life care planner, a care manager, a life insurance professional, a government benefits application specialist and claims processor, and there are many more. A team of eligible professionals can work together to bring out the best for the beneficiary's future.

A Legal Guardian For The Beneficiary With Special Needs

In the case of a beneficiary who might not be able to make health or safety decisions because of his disability, it is important for the parents to appoint a legal guardian after their death. But for this, they first need to become court-approved legal guardians, after their child turns 18.

Estate Planning Done by Discussions With the Beneficiary

Something achieved by a joint discussion always yields better results. If an adult beneficiary is sound enough to make legal decisions, it will be fruitful if the donors take his opinions into account while allocating their assets. If you need any help with your special needs planning please contact us here.

Interested in Working With Us?

If you need help with estate planning or any other legal concerns, we are here for you. Don't hesitate to contact our firm directly for assistance. Our dedicated team is ready to provide support and guidance to you and your loved ones during important life transitions.


Whether you're ready to schedule a strategy session to discuss your specific needs or if you're interested in exploring our wide range of complimentary guides and additional resources, we encourage you to get in touch with us.


With licensed attorneys and offices located in both Illinois and Missouri, we are well-equipped to serve clients in these regions. Reach out to us today and let us leverage our expertise and care to guide you through the legal process.

Helpful Guides

Begin your journey by taking advantage of our collection of complimentary guides.

View Guides

Online Documents

Simple & Convenient, Cost Effective, Attorney Reviewed Documents.

Learn More Here

Recent Posts

06 May, 2024
As we journey through life, one inevitable truth is the process of aging. In the United States, this reality brings about a myriad of legal considerations and challenges, prompting individuals and families to seek guidance in the realm of elder law. From estate planning to long-term care, understanding the intricacies of elder law can greatly ease the burden of navigating the complexities of aging. In this blog, we explore some frequently asked questions about elder law and delve into the landscape of aging in America.
Show More
06 May, 2024
As we journey through life, one inevitable truth is the process of aging. In the United States, this reality brings about a myriad of legal considerations and challenges, prompting individuals and families to seek guidance in the realm of elder law. From estate planning to long-term care, understanding the intricacies of elder law can greatly ease the burden of navigating the complexities of aging. In this blog, we explore some frequently asked questions about elder law and delve into the landscape of aging in America.
By Madison Canada 29 Apr, 2024
Many people overlook the importance of ongoing estate planning, assuming a will or trust is adequate. However, this passive approach can bring costly consequences for both finances and family in the future.
19 Apr, 2024
Are you feeling overwhelmed by the complexities of Medicaid in Illinois and Missouri? You're not alone. Many people find themselves in a maze of regulations, paperwork, and confusing terminology when trying to access this vital healthcare program. In this blog post, we'll break down some of the key aspects of Medicaid and discuss why seeking help is essential for ensuring you get the benefits you deserve.
09 Apr, 2024
When it comes to estate planning, delaying action can have far-reaching consequences that extend well beyond our lifetimes.
08 Apr, 2024
If you don't have a plan in place for your assets, the state will step in to decide how they are distributed. While some may trust the state's judgment, it's important to recognize that it doesn't understand your individual circumstances, and the process can be both time-consuming and expensive.
04 Apr, 2024
Click HERE To View April Newsletter
More Posts
Share by: